Dr. Tom Bootsma is a postdoctoral fellow with a medical background at the Department of Public Health at Erasmus MC, where he is part of the Medical Decision-Making research team. Since 2021, he has been a member of the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group, working as a study coordinator for the health-related quality of life sarcoma project and collaborating on several other international projects.
His current international research, funded by the EORTC Quality of Life Group, focuses on assessing health-related quality of life among sexual and gender minority cancer patients, including what to measure (content) and how to measure it (language). He was selected to participate in the 2024 Sexual & Gender Minority Curricula to Advance Research and Education Workshop in Houston, Texas.
Erasmus Medical Center Rotterdam
Internal post address Na-2401
P.O. Box 2040
3000 CA Rotterdam
Visitor address:
Erasmus MC
The department is located at the 23th and 24th floor of the NA building.
Dr. Molenwaterplein 40
3015 GD Rotterdam
DIVERSITY-QOL EORTC Quality of Life Group ECI Fellowship:
Health-Related Quality of Life Assessment within Sexual and Gender Minority Cancer Population
RESPECT EORTC Quality of Life Group commissioned call:
Rethinking EORTC Quality of Life Measures to Embrace and Support Transgender, Gender Diverse and Intersex People with Cancer
Chair POCON working group Partners in Research
Member of POCON working group Equity and Partners in Research
Member WO working group NVPO
Chair of MCRN working group NVPO
Member of MASCC
Member of LGBTQI workstream European Organization of Cancer
Publications list
Most relevant publications
Diversiteit en inclusiviteit in psychosociaal oncologisch onderzoek in Nederland en aanbevelingen voor de verbetering van representativiteit. Representativeness of psychosocial oncology research in the Netherlands and recommendations for improvement: a mixed-methods study
TSG Tijdschr Gezondheidswet
Understanding Physical Functioning in Patients with Sarcoma After Amputation: Using an International Classification of Functioning, Disability and Health (ICF) Approach
Ann Surg Oncol.
ASO Author Reflections: Physical Functioning in Patients with Sarcoma After Amputation: Are Current Questionnaires Fit for Purpose?
Ann Surg Oncol.
Exploring preferences in breast and cervical cancer screening for transgender individuals: Focus groups with healthcare professionals and transgender individuals
International Journal of Transgender Health
Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study
Head Neck
Core Patient-Centered Outcomes for Adolescents and Young Adults with Cancer: A Comprehensive Review of the Literature from the STRONG-AYA Project
Cancers
'There is still a part of me that would love to be the old me again', how do adolescents and young adults (AYA) experience cancer-related bodily changes: a phenomenological interview study.
J Cancer Surviv.
Exploring the interconnectedness between health-related quality of life factors among long-term adolescent and young adult cancer survivors (AYAs): a network analysis.
Support Care Cancer.
Using smartphone-based ecological momentary assessment and personalized feedback for patients with chronic cancer-related fatigue: A proof-of-concept study.
Internet Interv.
Switching the scope from "how to identify cancer survivors" to "who is participating in cancer survivorship research": A proposal for a new focus.
Cancer
VO Patient volgen Medicine
VO Wie is mijn ally deel 1